Diseases such as pheochromocytoma and paraganglioma are considered “rare” or “rare” but they are not invisible! Patients and their relatives and friends, face the problem of getting a diagnosis and access to appropriate treatment, often feeling alone and helpless. In PHEiPAS we fight for these barriers and fears disappear. Here are a few testimonials from patients and relatives who have gone through this situation we present.
My name is Isabel, I am an oncologist and I want to tell you our experience with a young patient diagnosed in 2003 and with no treatment options. She was our sister Merce, who was just 35 years old and whose death left four little children
My daughter’s name was Laura, she was 27 years old, she was married and her daughter was just three months old.
One day in February, in 2006, she suddenly started to feel unwell and we called …
My story is no different from many of our friends affected by this disease.
Despite being a doctor, the tumor has cheated me as much of you.
I am 57 years old. I am Medical Doctors, specialist in Intensive Care Medicine. I Work in the ICU of Hospital of Motril (Granada).